Misconceptions about spinal cord injury (SCI) are pervasive, often oversimplifying or distorting the realities of life with SCI. These misunderstandings fail to reflect the vibrant, dynamic lives individuals with SCI lead. At the Craig H. Neilsen Foundation, we recognize the importance of creativity—one of our core values—in addressing these assumptions and advancing innovative solutions in both research and programming. Together with our grantee partners, we’re not just breaking down outdated ideas; we’re showcasing how creativity drives meaningful change for the SCI community.
One common misunderstanding is that people with SCI are solely focused on walking again. While mobility can be a significant goal for many—and some individuals with SCI retain the ability to stand or walk to varying degrees—individuals with SCI have diverse priorities that go far beyond physical rehabilitation. Building strong families, managing health like bowel and bladder care, advancing in their careers, and pursuing education are significant aspects of one’s quality of life. For instance, one grantee partner developed a program focused on workforce inclusion and is addressing barriers to employment by offering job readiness training, mock interviews, resume assistance, and job placement support. Participants leave not only with the tools they need to secure employment but also with greater independence, stronger community connections, and the ability to pursue fulfilling careers. This kind of impact reflects the breadth of goals within the SCI community and the creative ways grantees are helping individuals achieve them.
Another misconception suggests that certain activities are just not possible for individuals with SCI. However, adaptive programs have repeatedly demonstrated that access, not ability, is often the deciding factor. Through scientific advancements, specialized equipment, and supportive environments, individuals with SCI participate in activities like surfing and skiing as well as other high-energy pursuits. By embracing the opportunity to challenge assumptions about what’s achievable, they take themselves and others beyond perceived barriers. As an example, adaptive surfing programs equip participants with customized boards and expert guidance, ensuring both safety and inclusion. These initiatives aren’t just about recreation—they’re about restoring confidence, fostering community, and proving that inclusion isn’t just possible, it’s necessary. When individuals with SCI have an opportunity to participate fully, not only do their lives change—it allows perceptions to shift, barriers to fall, and a more equitable world to take shape.
As the program leader from Life Rolls On Foundation described, “It has allowed us to provide more people with SCI a platform not only to surf and do something they may have never thought was possible, but we also provide a safe and comfortable environment to interact with other SCI people, helping to create long-lasting friendships and boosting self-esteem. The impact is truly amazing and priceless. You can witness transformation and see the smiles it puts on these people’s faces.”
While creative adaptations continue to expand what’s possible, it’s important to acknowledge that systemic barriers persist. A world not designed with SCI in mind still limits participation, often due to inaccessible infrastructure or exclusive environments. Addressing these challenges requires creativity not only in designing programs but also in rethinking how spaces, activities, and systems can be more inclusive. At the same time, individuals with SCI often demonstrate remarkable ingenuity, finding alternative ways to achieve their goals using the tools and resources available to them. This resourcefulness highlights the resilience and creativity of the SCI community and the need for proactive, inclusive design that minimizes barriers rather than requiring workarounds.
At the Craig H. Neilsen Foundation, we see firsthand how the SCI community rethinks its limits every day. The work of our grantee partners not only challenges myths but also builds a future where individuals with SCI are empowered to pursue their ambitions—on their terms. By shedding light on these stories, we aim to create a more informed, inclusive, and equitable world.